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Data released on May 14, 2018

Supporting data for "The Research Data Management Platform (RDMP)"

Nind, T; Galloway, J; McAllister, G; Scobbie, D; Bonney, W; Hall, C; Tramma, L; Reel, P; Groves, M; Appleby, P; Doney, A; Guthrie, B; Jefferson, E (2018): Supporting data for "The Research Data Management Platform (RDMP)" GigaScience Database. http://dx.doi.org/10.5524/100455 RIS BibTeX Text

The Health Informatics Centre (HIC) at the University of Dundee provides a service to securely host clinical datasets and extract relevant data for anonymised cohorts to researchers to enable them to answer key research questions. As is common in research using routine healthcare data, the service was historically delivered using ad-hoc processes resulting in the slow provision of data whose provenance was often hidden to the researchers using it. This paper describes the development and evaluation of the Research Data Management Platform (RDMP): an open source tool to load, manage, clean, and curate longitudinal healthcare data for research and provide reproducible and updateable datasets for defined cohorts to researchers.
Between 2013 and 2017, RDMP tool implementation tripled the productivity of Data Analysts producing data releases for researchers from 7.1 to 25.3 per month; and reduced the error rate from 12.7% to 3.1%. The effort on data management reduced from a mean of 24.6 to 3.0 hours per data release. The waiting time for researchers to receive data after agreeing a specification reduced from approximately 6 months to less than one week. The software is scalable and currently manages 163 datasets. 1,321 data extracts for research have been produced with the largest extract linking data from 70 different datasets.
The tools and processes that encompass the RDMP not only fulfil the research data management requirements of researchers but also support the seamless collaboration of data cleaning, data transformation, data summarisation and data quality assessment activities by different research groups.

Contact Submitter

Additional information:

https://github.com/HicServices/RDMP

https://www.dundee.ac.uk/hic/

Keywords:

clinical datasets translational research research data management data catalogue health informatics record linkage 

Software

http://gigadb.org/images/data/cropped/100455.png

Funding:

  • Funding body - Medical Research Council (MRC)
  • Award ID - MR/M501633/1
  • Awardee - A Morris
  • Funding body - Wellcome Trust
  • Award ID - WT086113
  • Comment - Scottish Health Informatics Programme (SHIP)
  • Awardee - A Morris
  • Funding body - European Commission
  • Award ID - 633983
  • Comment - Horizon 2020 research and innovation programme
  • Awardee - M-C Zennaro

Files: (FTP site) Table Settings

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File NameSample IDData TypeFile FormatSizeRelease Date 
mixed archivearchive1.57 MB2018-05-08
GitHub archivearchive60.86 MB2018-05-08
ReadmeTEXT2.4 KB2018-05-08
Displaying 1-3 of 3 File(s).

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